Skip to content

Posts from the ‘life and death’ Category

Birthday memories

Today my dad would have turned 95, if he had survived this long.

Instead, the ghastly, grotesque illness called Motor Neurone Disease (that’s MND in Australia, and ALS or Lou Gehrig’s Disease in the US) diminished him to death at the age of 67, twenty-eight years ago. Even back then, in 1990, we were hoping for a cure ‘soon’. While some people live for a long (and extremely difficult) time with MND (notably the brilliant Professor Stephen Hawking), many die much sooner. For my dad, the progress of the disease from diagnosis to death was four short years.

While there has been some progress in the treatment and management of MND, we are all still waiting. This was brought home deeply by the recent Australian Story program, ‘The Enemy Within’, detailing the work and illness of the amazing Justin Yerbury.

I still miss my dad. And although I know that he would have completely supported my writing career, and that he always encouraged me, I really, really regret the fact that he doesn’t know about it, and that I haven’t been able to share this stage of my life with him.

Knuppels_1933

There are so many untold stories. I think one day they will appear. What I’m thinking about now is the last time I saw him, in the hospice, on the day he died. Dad explained that a male nurse, all in white, had visited his room in the night and said that it was time to leave. Dad said, ‘I told him I couldn’t walk, but he said it was time to go.’

I checked with the staff – no male nurse had been on duty the night before. Strange.

But a few hours later, after all his visitors had gone, my dad up and left.

Agency models

Here is an essay about the difficulty of locating strong women role models in our cultural narrative history. The featured image is a painting of Judith slaying Holofernes by the 17th century Italian Baroque painter Artemesia Gentileschi, the first woman painter to be accepted into the Florence Academy (yes, there have been novels writter about her!).

We’re taught that all narrative conflicts boil down to one of three stories: man versus man, man versus himself, or man versus nature. So what about women?

via Acting With Agency: The Power and Possibility of Heroic Women — Longreads

Diagnosis blues

This week has been quite a difficult one. We discovered that our mother has a brain tumour. While this explains all of the bizarre and inconsistent and unreliable behaviour that we’ve been noticing recently, it’s a bit of a shock.

Did I tell you how Mum was acting more and more strangely and refusing help? Well, one day a couple of weeks ago she took herself off to the doctor in a taxi (at a time when she should have been home for the cleaner – resulting in multiple phone calls with the next step being the police! – because she didn’t tell anyone she was going – but that’s another story). Mum went to ask if she had dementia, so the doctor ordered a CT scan that afternoon. The first I knew about it was a call from Mum saying I had to take her to the hospital for a brain scan. All the way there, she criticised her children as being too managing, too interfering, too nosy, and for sending too many helpers, and making too many phone calls, and ordering the wrong food to be delivered. She was certain that the brain scan would show no dementia and that after the diagnosis we could all just leave her alone, thank us very much. Very Greta Garbo.

The upshot is, after a lengthy scan and a trip back to the GP, that she has a meningioma which is not malignant in itself, but steadily growing and impacting on her brain function. Off we went to the neurosurgeon next day, who ruled out surgery (her bad health and a long recovery time) and any other treatment (tumour too large for radio). And a palliative care team has been allocated to us.

So it’s been  an interesting time, negotiating all of us siblings and our diverse opinions. Mum, on the other hand, is very stoic and quite serene, and says she’s much happier now that she knows. She is calling everyone in her address book to tell them she has a brain tumour!

Greta Garbo ‘Wild Orchids’ film still from Wikimedia Commons at https://commons.wikimedia.org/wiki/File:Garbo_wild_orchids.jpg?uselang=en-gb